It’s Go Time! We Just Launched The Face Off For Scleroderma Campaign! Please Join Us!

 

LOGO for email

Welcome to the Face Off For Scleroderma Information page.

Directions For Participating in the  Face Off for Scleroderma Campaign:

  1. Take a selfie of yourself without any makeup on (girls,boys, and men you are encouraged to participate).
  2. To learn more about how this campaign started after the Facebook Ad Team rejected an ad featuring my bare face, click here.
  3. Scroll down this page to find the details on how to make a donation, if you have the means to do so. This is OPTIONAL (though all donations to SRF and SF are truly appreciated). I know not everyone can afford a donation. I don’t want finances to get in the way of joining this campaign.
  4. Copy and paste the message below (only the text that is underlined should be copied and pasted) with a picture of your bare face (no make up) on Twitter, Facebook, Instagram, or any other social media that I don’t even know exists.  If you do all 3, that will give the campaign the most “points “ for the hashtag. Make sure to include your  bare-faced  selfie with the following message:

#sclerodermaselfies I’m going bare for scleroderma in honor of the more than 400,000  patients who suffer from this rare disease.  I nominate (tag a friend), (tag a friend) and (tag a friend) to take their face off for scleroderma and keep the chain going by nominating three more friends. Go to www.comfortableinmythickskin.com to make a donation (optional), learn more about the campaign, and the bare face that started it all.

* We want everyone to participate; men and kids’ bare selfies send the same important message!  Anyone not comfortable posting a bare selfie is still encouraged to join in. We want to show that ALL faces have a place on Facebook.

PLEASE READ THE CRUCIAL INFORMATION BELOW

*Cutting and pasting the above underlined information is CRITICAL! I’ve seen many lovely variations/ interpretations of #sclerodermaselfies in the last 8 days. Unfortunately, if you don’t cut and paste the underlined verbage above, the campaign will lose momentum. PLEASE REMEMBER TO NOMINATE AND TAG MORE PEOPLE, INSTEAD OF  LEAVING THE TEXT “(tag a friend)” AS-IS. I laugh every time I see this, because this is a mistake I would make!

*When possible, please nominate friends who are not in your same location/ friends who don’t know me personally. For example, my wonderful little brother (I adore you – don’t be mad at me for calling you out on this) who lives in Texas, nominated my mom, our other brother, and our cousin. I love you little bro, but those nominations are not gonna help us spread this campaign :).

If you have the means,please make a Donation For Faceoff For Scleroderma

Click here to donate to the Scleroderma Research Foundation. Their mission is to raise funds for research which will lead to a cure.    OR…….  Click here to donate to the Scleroderma Foundation. Their mission is to provide support for patients, educate the public, and research for a cure.

*If you have the means, and are feeling generous, please consider donating to both foundations.

My message to you 7 days after our launch.

 

cwvDm9asA_Lw9YsGTQNy8vWzhk4
ABC News Chicago came out to cover the event live.

 

 

 

 

 

To learn more about our launch party and the days that followed, click here.

To see a  clip of me speaking about my life with scleroderma, click here:  https://youtu.be/IThIaW02dRY

To learn more about my personal story, please consider purchasing my memoir, Does This Hopital Gown Come With Sequins? (and Other Questions I Asked During My 218-Day Hospital Stay)

I will be donating a  portion of all book sales to the Scleroderma Foundation and the Scleroderma Research Foundation.

Cover on amazon

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s